A Lot Is Changing This Year

Event Details:

Wed., March 7, 2018

6 to 8pm

at IAC

150 West 30th Street, 15th Floor


CMS (Center for Medicaid and Medicare) is demanding changes. Federal cuts have resulted in budget deficits. Staff shortages are threatening proper supervision and we are moving slowly to Managed Care.

EVAN SULLIVAN*, former Legislative Aid to Senator Carlucci who now works influencing the Legislature at Ostroff and Associates will help us understand how we can best protect and support our family members. He knows all the players and how the legislative process works.

Special Guest:  Susan Constantino, President and CEO of Cerebral Palsy Associations of New York State (CP of NYS)




Become involved now: Events and Meetings on Developmental Disabilities for friends and families.

Legislative & NYS Budget Events in NYC

Budget Briefings at each Borough Developmental Disability Council Meetings

Each Council sponsors an event with legislators as well.

Budget Briefings:

  • Brooklyn: February 26, 2018
  • Bronx: February 28, 2018
  • Manhattan: February 8, 2018
  • Queens: February 5, 2018
  • Staten Island: February 16, 2018

Legislative Events:

  • Brooklyn: March 9, 2018
  • Bronx: March 16, 2018
  • Manhattan: March 9, 2018
  • Queens: March 9, 2018
  • Staten Island: March 2, 2018
Visit the website of the DD Council in YOUR borough for details


Get Ready To Travel:



Thank You to the 100+ who participated in NYC FAIR’s Meeting about CCOs & CAS on October 23rd, 2017

JoAnne Lamphere, Kate Bishop & Diane Woodard presented for OPWDD

Click Here for The Power Points & Hand-Outs used during the meeting


Concerned about the lack of Residential Opportunities in New York State: Read “Keeping The Promise” Report to the Governor & Sign the Petition: Details HERE


NYC FAIR as part of the collaborative efforts of SWAN (NYC FAIR, GROW, ENYDDA & DDAWNY FC) was invited to meet with OPWDD’s Acting Commissioner Delaney about Care Coordination Organizations and related topics.

Read SWAN’s Memorandum Of Concern: CCO / HH


Things Are Happening NOW:

Sign up for OPWDD’s emails today
“Join the Conversation” and be empowered with accurate, timely information & have the chance to be heard
Join the Conversation: opwdd.ny.gov/jointheconversation 










20 thoughts on “

  1. Thank you so much for coming.
    That will be among the postings from the meeting that will go up by Monday morning.

  2. Thank you for all of your hard work and perseverance on behalf of our adults with developmental disabilities. As the mother/guardian of a 25 year old young man with significant intellectual disabilities who is thriving in a day habilitation program but will require residential placement and job opportunities sooner rather than later, it alarms me to hear about the closing of ICFs and dilution of other supports without adequate planning and all in the name of self direction. I received this link from other worried mothers and I appreciate being included on the mailing list. Patricia Roback

  3. Great to hear from you.
    Lots to be alarmed about….We will send an email…FB…Website update…about our plans to let our legislators know what we are confronting.
    What borough do you live in…receive services in?
    Will be in touch ,
    Elly Rufer

  4. Thank You for you work , I will do anything in my powers to fight for the rights of my son.. Thank you for keeping me informed..

  5. They would rather pay $40 an hour to an agency offering little to no personal satisfaction to the individual than pay $20 an hour to a workshop where the individual works and feels a sense of accomplishment.Our kids are just like everyone else they get a sense of pride doing a good job.The whole goal of self determination was to have each individual use an allocation of money in the best way for them.

  6. I did a great job giving out my speech to all the audience at the Sheraon Hotel on stage. I wanted to get college funding savings after when I earn my GED diploma, and have a great part time job as a sales person at a retail store. I’m a volunteer at Toys r us, clean the shelves, and organized the items neatly, and a volunteer at Walgreens, stocked the items on the shelves, and place the overstocked items back to the stock room. On Mondays and Wednesdays I take the q104 bus to Toys r us, and on Tuesdays and Thursdays I walk to Walgreens from day hab. I’m a self advocate student, I have a great future, and I stay on the right track.

  7. Gracias por la información y por su trabajo para tenernos al tanto de lo que esta pasando con los Cervicios de nuestros hijos muchas gracias

  8. Gracias x mantenerme informada aserca de lo k esta sucediendo acerca de los servicios relacionados con mi hijo.

  9. Our family member with disabilities is in need of residential placement in Akron NY. Please send any information about the program. Our msc is helping us very slow process.WE need more care soon illness an age creeping up very difficult situation.

  10. I would like to be included in any way to advocate for residential placement for my son, living at home.

  11. Gracias por informarnos sobre los servicios, de nuestros hijos .estamos todos juntos para luchar por ellos ….

  12. So TRUE.

    For my family, I know this has haunted us from the time our daughter was young.

    But every day, we chase our tails, resending paperwork that we have sent previously
    or learning “new rules” that have no bearing to our reality.

    Thank you from my heart for writing and organizing this. Ann Gordon for Jenny

  13. Please submit YOUR testimony to us for posting: nycfair@gmail.com
    OpW has said…they will only post a summary. We think we all should have access to everyone’s thoughts, opinions, and advise.

  14. While we are based down-state..we can help you figure out your allies. Where is Akron, NY? Near?

  15. Thank you — I will be checking this website and taking ACTION for my son, and for others/ children as well.

  16. I am interested in joining this group. There are so many issues that are not being addressed on a legislative and community level that negatively impact people with disabilities, particularly as they age. I am a family member; a strong advocate and offer my support.

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