Category Archives: Meeting Minutes & Handouts

IMPORTANT EVENTS, INFORMATION & DATES GATHERED FOR NYC FAIR’S 10/23 MEETING

 

October 23. 2017

 

RESIDENTIAL NEED: Make Certain OPWDD Knows!

Contact your MSC to find out if you are on the Certified Residential Opportunity (CRO) List. If not, the MSC gives you a form titled “Certified Residential Opportunity” you complete it and send it back to your MSC who turns it into OPWDD 

“Keeping The Promise” proposes to make certain Residential Opportunities are available. Read both the “Report to the Governor” and the Petition available on our website.

 

SPECIAL EVENTS SPONSORED BY DD COUNCILS: FREE FOR FAMILIES

Queens Family Support Services Conference: 10/27/17, 8am-4pm, Queens College, 65-30 Kissena Boulevard, Queens, NY, 11367

Staten Island Family Resource and Transition Fair: 10/27/17, 9-1pm, College of Staten Island, Center for the Arts, 2800 Visctory Blvd., Bldg 1P, Staten Island, NY 10314,

Bronx 14th Annual Health Services Committee Conference : 11/17/17, 8:30 – 4pm, Lubin Dining Hall, Block Building, Albert Einstein College of Medicine, Morris Park Ave., & Newport Road, Bronx, NY 10461 REGISTRATION REQUIRED

Manhattan Family & Professional Resource Fair: 12/14/17, 10-2pm, New York College of Medicine

Details of DD Council events and information about regularly scheduled meetings on their individual websites.

 

OPWDD NEWS:

Here More From OPWDD: Join the Conversation: opwdd.ny.gov/jointheconversation 

People First Care Coordination Forums Coming in November to ALL Regions

See Dates & Detail on NYC FAIR’s & OPWDD’s website

 

LOOK FOR MANY MORE CHANCES TO LEARN WHAT’S AHEAD: STAY CONNECTED

 

Of Interest:

Senator Gillibrand: Constituent Affairs Flier

Help available on many issues : Separate hand-out

 

SWAN UPDATE:

Justice Center Presentation at the GROW Annual Meeting: Recap Soon

& More: Look for Announcement of SWAN’s Revamped Website

& Face Book presence

 

  

FOR POLICY WONKS: Opportunities to Learn More

October 24th:  CTHE Consortium Conference (Communities Together for Health Equity) to be held Tuesday, October 24, 2017 from 9:00 AM-5:00 PM at the SUNY Global Center located at 116 East 55th St.

Please register using the link below:

https://www.eventbrite.com/e/breaking-ground-engaging-cbos-in-health-equity-tickets-38536104526

 

Dec 12th: Quarterly CMS Advocates meeting for Medicaid and Medicaid Managed Care

Opportunity for advocates to confer with NYS officials about details of policy and implementation, with participation from CMS officials.  For more details, reach out to: Maria.Tabakov@cms.hhs.gov

 

Nov & Jan: Value-based Payment Boot Camps

November 15th on Long Island.

January session in NYC will be posted soon.

https://www.health.ny.gov/health_care/medicaid/redesign/dsrip/vbp_bootcamp/2017_sessions.htm

 

 

Here’s What YOU Can Do NOW!

BE HEARD NOW:

OUR WORKFORCE MUST HAVE OUR SUPPORT

DOWNLOAD, CUSTOMIZE, MAIL, EMAIL THE 4 LETTERS BELOW TO GOVERNOR CUOMO AND YOUR NYS ASSEMBLYMEMBER AND NYS SENATOR
Letters can be edited 

Letters in Support of Direct Support Professional:

To Governor Coumo:
To NYS Assemblymembers and NYS Senate:

Letters in Support of 4410 and 853 Schools

To Governor Coumo
To NYS Legislators

Link to find your legislators:
NYS SENATE
NYS ASSEMBLYMEMBER


FORWARD THE LETTERS TO ALL YOUR RELATIVES, FRIENDS AND CO-WORKERS

This is the information about the “Workforce Crisis” that was distributed at the Nov. 2nd Meeting

Data Sheet from #bFair2DirectCare
Statics about 4410 & 853 Schools supplied by IAC
Spending Patterns OPWDD supplied by DDWANY
Residential Survey by New York Lawyers for Public Interest (NYLPI)

 

ACT NOW

GET READY FOR ACTION

Social Media with Natalie Belva

NYC FAIR’s Social Media Meeting WAS May 24th

Natalie Belva, Digital Media Manager, Marketing and Development, UCP NYC, and a Sibling, was superb!

Here is the link to the presentation
http://prezi.com/skqstqitvms1/?utm_campaign=share&utm_medium=copy&rc=ex0share

Here is the link to the presentation as a NatalieBelva_SocialAdvocacy (1) Power Point

Here is the link to: Important Sites To Follow

We WILL Follow Up with:

Social Media 101: Coming Soon

NYC FAIR Meeting Tuesday March 22, 2016

Presenting : Pete Pierri, Executive Director of IAC (Inter Agency Council)

Michael Seerighter, Executive Director of NYSRA(New York State Rehabilitation Association) and sibling

Reported that NYC FAIR was at the rally held Friday March 11, 2016 and SWAN did upstate in Rochester, Buffalo and Albany

Pete Summarized the budget process – the Governor submits his proposal, and then each of the two houses look at the budget and they decide what they would like to see in the budget. There is a negotiation to hone the final one which is done by April 1.

The two houses weren’t much different. The Assembly did $200 million in it to pay for increases in the minimum wage to cover many agencies beside OPWDD.

The Senate did not put any money in nor did they agree to raise the minimum wage.

IAC’s concern is wanting the minimum wage but to get more for DSPs as they should be paid reflective of the work they do and their importance to our field.

Michael: The minimum wage has galvanized all agencies that supply services to people, there is a lot of common ground. The Human Services Counsel had a press conference just like the one IAC has the week before.

We have seen a general devolution of the status of people who provide supports to other people. We are fighting against that trend. We’ve gotten a lot of media attention. The Governor’s office is very conscious of press attention, they called to say ‘don’t rally’, .The Governor has been going on the offense against providers, not just in the DD field but non-profits across the board talking about Executive Compensation, that the State of NY has never increased funding for the minimum wage. We are trying to refute that.

This is a highly fluid issues that is hard to influence.

The Senate is split by one seat and there is an election April 19 that could flip the entire house. The legislators are all watching out for themselves. Don’t think there will be an agreement til the Senate seat is decided.

The coalition of family groups, SWAN – speaks to the gravity of the situation and the threat it proposes. If the minimum wage passes without funding then there are agencies that will close.

There is a lot of anxiety and stress in families now. Need to heighten the conversation

Best way to communicate is to be in their faces, Federal and State government operates in a crisis mode. We need to present them with a crisis, whether electoral or functional.

 

Pete: one of the disappointing things, despite all the public forums where Residential was the biggest issues, some money but it is the same rate. We want a planned process, not crisis reaction.

That is the ultimate in Person-centered planning. Can’t let the pressure up,

 

People should go to the state with their requests, not be put off because they think they aren’t going to get them. Get yourself there and get documented, if turned down then collectively we can turn this into some action

 

Ellen McHugh: is there a tip sheet to take to the Legislature, a script with 3 or 4 things to leave with them so they can take that back to their leaders

 

Elly: If OPW doesn’t get any money then we need to get on every single panel, Delaney says she’s rolling out committees to make decisions. Lets get new faces on the these panels.

 

The Clinical Advisory Group cannot do it with just clinicians and executives, SWAN is sending a letter to legislators about this.

 

Pete: Go to the Commissioner and ask her for a list of the groups and we will tell you our interest in being on them, find out about all the potential opportunities.

 

Takeaways:

 

Stay in touch with your legislators now and going forward, write, call, show-up. This should not be just in response to the budget, increase the pressure so that they understand that they have a problem

 

Get a list of all the work groups, committees and panels concerning our family members and make sure there are family members on them.

 

Start a social media campaign using Facebook, Twitter, Youtube and Instagram

 

Emphasize that these are needs, not wants – unmet needs

 

Need to create committees to work on the following topics to report back to the group

 

Social Media – using all forms

 

Financial –challenges of the system, funding sources

Policy – the committees and workgroups that make policy

Politics – how the systems function and how they fit in the larger system (CMS)

 

Possible further meetings for parents coming up:

 

How to get through the Front Door,

 

How to get on the Certified Residential Opportunity List