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GOVERNOR VETOES ALL FOUR BILLS – from a NYSARC Memo

From a NYSARC Memo”

GOVERNOR VETOES ALL FOUR BILLS

A couple of weeks ago, in anticipation of the Governor’s actions on the bills below, we asked you urge him to sign the measures.  We were reasonably sure the Governor  would veto at least one of the bills, namely S6641 which reforms the Front Door process.  In fact he vetoed all four bills.

No doubt anticipating a negative reaction to such sweeping vetoes, the Governor waited until after elections to have the bills delivered to his desk.  Prior to elections the Governor signed one key bill, S.7232 requiring the Justice Center to follow safety protocols when interviewing a consumer.

All the bills below represent important concerns for people with developmental disabilities and their families.  The sweeping nature of his vetoes is troubling especially given a continuing lack of engagement and transparency by the Administration with the entire field regarding these bills and other issues, an indifference which appears to extend beyond the field of developmental disabilities to other human services areas.

Here are the bills along with the veto messages (see links) released by the Governor:

1) The S.6641 by Carlucci reforming the Front Door process. The Governor’s veto message sites cost and duplication of reform efforts already underway as the reason for his veto.  Reports however indicate that the Front Door process is still broken and that the crisis of people in need of out of home care – an important part of this bill – is getting worse, not better.

2)  S.7400 by Carlucci requiring that providers of service contracting with Managed Care Organization’s continue to consist of the trusted system of nonprofit and public providers.  The Governor’s veto message claims that the bill violates the Commerce clause of the US Constitution by limiting entities that can provide services under managed care.  This was wasn’t mentioned in extensive negotiations during the Spring.  That the Commerce Clause came out of the blue makes us skeptical that it is a valid excuse.  Furthermore, this veto raises disturbing questions about what the Administration intends the managed care system for people with developmental disabilities to ultimately look like.  Does it intend to replace the current system, at least in part, by inviting out-of-state for-profit provider into New York State?  Does the Administration currently have no such plans but wants the flexibility that this bill would eliminate?  Or is the reason for this veto in fact legitimate?

We don’t know the answer but this particular veto greatly increases the existing uncertainty around managed care; further underscores concerns about a lack of transparency; and, adds even more confusion to the entire managed care initiative.

3) Task Force bill S.6659 establishes a Task Force to assess and plan for the needs of Adults with developmental disabilities.  The veto message states that this “legislation simply duplicates efforts the Administration has undertaken” as well as the efforts of the Governor’s Olmstead Cabinet.

4) People First bill S.1109 requires identification of gaps in the existing developmental disabilities service system.  The veto message states that this “legislation simply duplicates efforts the Administration has undertaken”

Summaries of vetoed bills:

1)      “Front Door” S6641-C (Carlucci)/A8846 C (Weisenberg)-This bill would amend the Mental Hygiene Law to require the Commissioner of the OPWDD to develop a plan to overhaul and improve the front door process. The Front Door is intended to allocate services to people with developmental disabilities efficiently, based on person-centered planning.  S. 6641 requires that the Plan provide for a clear, rational and transparent Front Door process.  It requires expedited care for persons in critical need and for OPWDD to regularly submit an updated waiting list of people in critical need of out-of-home care.  The current Front Door process is making the issue of sufficient development for people in out of home care worse, not better.  This bill would hopefully improve that.  The plan must be submitted to the Speaker of the Assembly and the Senate Majority Leader no later than January 1, 2015 with implementation beginning no later than April 1, 2015.

2)      OPWDD Services Under Managed Care –  S.7400-B (Carlucci)/A.9766-A (Gunther) -This bill clarifies that those entities that provide supports and services for individuals with developmental disabilities, such as residential, day and employment services, must be public or non-profit entities with experience providing those services under OPWDD regardless of the type of managed care entity: Developmental Disabilities Individual Support and Care Coordination Organization (DISCO); Managed Care Organization (MCO); or Managed Long Term Care (MLTC) program.

3)      Task Force on Adults with Developmental Disabilities S6659-A (Carlucci)/A.8835-A (Gunther)-  This bill would create a task force on adults with developmental disabilities to study, evaluate and develop recommendations relating to measures to support and meet the needs of adults with developmental disabilities, including their vocational, residential and social needs. The task force will also study the long-term needs of adults with developmental disabilities who reside with caregivers. The recommendations of the task force would lead to the creation of a comprehensive plan for meeting the needs of adults with developmental disabilities which is to be submitted to the Governor and the Legislature by January 1, 2016.

4)      People First Act of 2014 – S.1109-D (Maziarz)/A.8452 (Gunther) – This bill requires the Commissioner of OPWDD to conduct a geographic analysis of the supports and services available in a community setting to individuals with developmental disabilities and to identify gaps in supports and services by regions of the state. The Commissioner is also directed to develop a web-based data base which will permit the prioritization of urgency of needs for those facing emergency or immediate need, those facing critical need, defined as additional services and supports within one year and planned need for those who will need additional services and supports within five years or where the individual’s caregiver is over sixty years old. Annual reporting requirements will allow the Legislature and the Executive to make informed policy decisions in the delivery of services and supports to individuals with developmental disabilities.

NYC FAIR’s Mentor/Mentee Project as Distributed on 11/5/14

THE NYC FAMILY ADVOCACY INFORMATION RESOURCE is a newly formed advocacy group comprised of family members of individuals with intellectual and developmental disabilities (I/DD) and concerned others. As the current family leadership is aging we are looking to the next generation of parents, siblings and others to become active participants in the lives of our loved ones.

Acquainting family members with the intricacies of the service delivery system for people with I/DD benefits everyone. It empowers families to advocate effectively. It will bring new people to the DD Councils. By increasing family representation, the DD Councils can become more collaborative, expand advocacy and better reflect the needs of families.

Our Mission:

  • Expand and strengthen the community of interest
  • Replenish leadership by recruiting, training, and mentoring younger parents and siblings.
  • Empower families by providing information about services for all age groups
  • Connect families with other families
  • Empower family advocates

We propose to support our mission and achieve common goals by starting a Mentor/Mentee Program.

Mentees can be people who have children living at home and those who have children living in residences as well as professionals from the field. Mentors should have a deeper understanding of the field and can share that knowledge with those are just learning how the system works.

Mentors and mentees can come from:

  • Service Provider Agencies
  • National/NY Sibling Leadership Networks
  • NYC DOE District 31 and District 75 schools
  • Pre-schools, elementary schools and high schools serving children with Developmentally Disabilities
  • NYS Partners in Policy graduates

 We would like to identify family members to join our Network as mentors and mentees in order to bring a new and stronger voice to the Developmental Disabilities (I/DD) Community.

ROLES AND RESPONSIBILITIES OF THE MENTORS

  • Commit to the program for a minimum of a year.
  • Provide one on one mentoring to the mentee throughout the year
  • Accompany the mentee to interagency meetings, public forums, advocacy and lobbying events as well as Network informational sessions on specific issues as much as possible.
  • Provide an overview of the history of the field, the current issues, challenges and the role of government
  • Foster a relationship that is conducive to open interaction
  • Offer counsel, guidance and encouragement
  • Be conscious and respectful of cultural and generational differences between myself and my mentee

ROLES AND RESPONSIBILITES OF THE MENTEE

  • Commit to the program for a minimum of a year.
  • Attend interagency meetings, public forums, advocacy and lobbying events as well as well as Network Informational sessions as much as possible
  • Learn from the mentors experience and knowledge
  • Be a good listener
  • Be open to feedback and suggestions
  • Initiate independent advocacy opportunities
  • Don’t be afraid to ask questions
  • Be conscious and respectful of cultural and generational differences between myself and my mentor

NYC fair for mentor.mentee-new = PDF Version

 

Developmental Disabilities Advocacy Survey

STATEWIDE COALITION OF DEVELOPMENTAL DISABILITIES FAMILY ADVOCACY ORGANIZATIONS

c/o Margaret Puddington ■ 562 West End Avenue, 2A, New York, N.Y. 10024 ■ phone 212-799-2042 ■  margaret.puddington@gmail.com

IMPORTANT: Please forward to other family members and self-advocates and to family and self-advocacy groups

Developmental Disabilities Advocacy Survey

Families and self-advocates can help set the advocacy agenda for the coming year by completing this brief Developmental Disabilities Advocacy Survey!  Results of the survey will be used to identify the top advocacy priorities across New York State.  Families’ and self-advocates’ top priorities will be shared with providers and provider associations and will be front and center of our statewide advocacy campaign to OPWDD and our elected officials to fight for what is needed!

Take 4 minutes to complete this survey today!

Please click on the following link and follow the directions to complete the survey:  Developmental Disabilities Advocacy Survey